Amber is still intubated, blood gas is good for now and she is constantly sedated so she can rest. Dr. Starnes will check on her on Monday morning. They have also done an EKG to figure out if the problem is with the heart (post surgery issues) or do more tests to see if its with the lungs (lung infection/pnemonia).
I feel like my heart can not break into any more pieces, that the life is sucked out of my body and soul each time we take a step back. Kurt is feeling the same way and we've come to a conclusion as to why. We felt that once her heart was fixed things would start to look up, once her heart was fixed she would be in recovery and then come home, once her heart was fixed... so we looked to the surgery as our goal and now... her heart IS fixed. The future is not clear as to what would be next for Amber. I speak to God everyday, I feel good that she is in his hands but it doesn't change the pain I feel when I see her with tubes and wires. It doesn't take away the tears I cry when I think of her being in LA by herself because I am here trying to put on a happy face for Taylor's birthday party. My faith, hope or trust that God is with her doesn't take away the experiences I've had with the uncaring nurses in my absence. I pray and thank you for praying with me...
Jessie,
ReplyDeleteToday I learned about your blog on Amber. I haven't read every entry, but I did read today's.
I don't know what to say that hasn't already been said...I wish I could take a little of the pain onto my shoulders so you don't have to bear so much.
I hope for a day when this is all a VERY distant memory.
Love,
Juli Young
Jessie,
ReplyDeleteI don't know if you remember me, but I'm Melanie's friend. We all went to Glen Ivy in Brea.
Anyway, Melanie shared this blog with me. I just wanted to let you know that since Melanie told me about Amber (even before she was born) my husband and I have been praying for you and your family and especially for Amber. We pray for her every night and I have put her on the prayer roll at church.
You are so strong and so brave. I pray that God will continue to give you strength and to protect Amber. She's a fighter!
Please let me know if there is anything that I can do.
Love,
Nicole Gross
Jessie,
ReplyDeleteOlivia and I say special prayers for Amber and your family every night!
Love,
Angie
Amber,
ReplyDeleteI will keep you in my heart and prayers. Please let me know if there are any times in particular that you would like me to sit with her. If they are aware you have a Neonatal/Pediatric expert sitting watch with you you're more likely to get better care from any "uncaring" nurses around. Also ask if their unit uses primary nursing and then you can request the nurses you know and like to primary her. That means when they come in they will have your baby and follow her until discharge. You also have a RIGHT to ask for a different nurse in the event you are not happy with who you have. I know you might not want to make waves but the squeeky wheel gets the grease! I will be working in the NICU tues and wens. My cell number is 949-374-6131. DO NOT hesitate to call me 24/7....I know those 3am awakenings from the hospital with a status report can be brutal. Also let me know again once she is home if you need a break....I am more than comfortable sitting with her.
With much care and concern
Rain