So many of you have given us praise for our strength. I can tell you that today right now, Kurt is holding down the fort. I am a mess, I know what I need to do but I can't. At this moment I can't stop crying, I can't stop thinking, I can't stop wishing, I can't stop worrying, I can't... I am so scared, so sad and I am trying not to be angry. So let me stop for a second to tell you that her surgery is scheduled for tomorrow first thing at 6:30am. My best friend, Maria, coming through again, will be coming to spend the night to be with the girls. Toni Long will be taking care of Kyana for school. Thank you so much ladies. I will be leaving as soon as Maria gets here. Please pray for my Amber... Love you all.
The plan. 1: fix ASD and valve. 2: if not good enough, see if big enough for artificial valve (probably not) 3: if not good enough, and heart too small for artificial valve, do Starnes Procedure - close off right side of heart and bypass it. It may be reversed later.
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In their words, parents Kurt and Jessie share the progress of daughter Amber's health, highlighting both her and their challenges and triumphs since her birth on February 10, 2009. Check back often for updates on her progress.
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