Every Hour

Every day, every hour things change with Amber. Yesterday they extubated, this morning she was struggling so instead of the nasal canala (the tube that goes across her nose like a mustache giving her oxygen) they were trying to decide whether to re-intubate or use sipap. In case you didn't know intubate is a tube that goes in her mouth or nose and down her throat to her lungs to assist or provide oxygen. Sipap is a little triangle that covers her nose and provides oxygen from tubes that don't go down her throat, they sit over her head (see picture). Needless to say they decided to keep her extubated and use the sipap to provide oxygen. They tested her blood gas - carbon dioxide and ph should be 60 & 6.9 - @ 10am it was 115 & 7.53. They wanted to give her a chance to get strong @ 1030am it 110 & 7.53 so it was going down a little. They waited an hour @ 1130 it was 74 & 6.9, GREAT it's going down, she's was also resting and calm, no narcotics. I got to hold her for an hour and a half after not being able to hold her for over two weeks. I was so happy, she was calm and resting. I even took this picture with my phone to send to Kurt... "guess who I am holding". Later Linda, my mother-in-law came and held her for an hour, still calm and resting.

At 730pm, Mission Hospital called the house, her gasses were up high again, they are unable to keep her calm even with narcotics, she had to be re-intubated...

Thank you for always thinking of us, thank you for your prayers, thank you for your jokes and silly things that make me smile :-) thank you for being there.... here.