Thank you for all your prayers, thanks to you Dr. Starnes is back from his family emergency and will be available for Amber after all. We no longer need to search for a new cardiovascular surgeon. I give lots of thanks to God for knowing what our path should be, for watching after my Amber and for keeping us together as much as possible.
On Friday, May 9th she had a bronchoscopy to examine her throat, airway and vocal cords... all is normal no problems. They took pictures of everything, its pretty cool.
On Monday, May 11th she had a Cardiac Catheterization to examine her heart, they put a camera through her left leg artery and video taped everything. All is normal and in the right place just waiting for the surgery to make the separation of the chambers and maybe close the leek of the tricuspid valve.
On Thursday, May 14th I started to feel sick but wanted to visit Amber before she is transferred to LA for surgery. When I got there (I am glad I convinced myself to go for a few minutes) the nurses were outside talking while her alarms were going off. She was sweaty, crying, dirty and no one there. As most of you know mama bears and lions protect their young now add ghetto to it. They got an ear full and a call to customer service, now they are on Amber watch, I just hope it continues when she goes to LA.
Today, Saturday, May 16th, I am sick like a dog. I was not able to visit Amber. Kurt, Kyana and Taylor are on a family campout in San Diego having fun. I am home waiting for the call that she is leaving Orange CHOC. They've called that the ambulance is on their way. Not sure why they finally listened or whether it was a good idea after all but no helicopter this time :-)... just got the call 5:35pm on her way to LA from Orange. We were penciled in for surgery on Thursday, May 21, pending her transfer to LA and bed availability.
Please pray for a safe journey, for the staff to watch after her, for the surgery to go as scheduled on Thursday and for its success. We are not only knocking on surgery's door but looking at four weeks for recovery in the hospital. This will bring my girls (Kyana & Taylor) to the end of the school year with us running around. I will be calling on all of you who offered to help with carpooling :-) I hope you are ready....
Thank you to the Hockman's for taking the girls on Saturday so I can visit with Amber while Kurt was at work. Thank you Kim V., for picking up Taylor so I can yell at the hospital staff without rushing out. Thank you Mike & Clare for the swing/rocking chair we got it yesterday. Thank you Janet for your devotion book that I read every chance I get. Thank you Michelle H., for your deep freezer for my milk that will allow for it to last longer and to you and Zach for watching the girls the first time I was nice about them watching after Amber. Thank you Robbie for keeping the other part of my milk. Thank you Alyson H., for our talk the other day. I know God has a plan, I know we are always tested and its up to us to have faith and patience for things to reveal themselves. A few days ago we were nervous and worried about looking for a new surgeon today she is on her way to the hospital that will fix her. Thank you for all your text messages, positive thoughts, prayers, and for watching after my girls. Thanks Robbie for bring them those little goodies the other day. I am trying to move these emails to a blog type of communication... it will be easier to have you check rather then trying to email every day or something.
I am so grateful for all of you... my little eyeglass wearing angel.
Love,
Kurt & Jessie
PS Grandma Linda I know your bags are packed so come over whenever you are ready and back from visiting your friend. Alaina come anytime you are ready also the more family is around the easier it will be to be away with Amber for me while Kurt is at work. Remember she will be in LA all this time.... as far as I know. We love you ladies and can't wait to see you.
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