On Tuesday, oral therapy didn't go so well. Amber did not like the bottle, the E-stem, the milk... I have no idea, she was not happy. I was hoping and praying that Thursday would be better. Thursday WAS better, she has a few swallows and was good with the bottle, we are making slow progress. On Saturday we went to Ian's 6th birthday party at the park. She had a great time. It was so good to see everyone and have everyone see how well she is doing. Angela, Eric and their families have been praying for Amber since before she was born and have followed all our ups and downs, they were so happy to witness such a great up. She loved being there, seeing all the kids run around and feel the HEAT... with some breeze here and there.
This week will be really busy and hopefully really informative. On Tuesday we will see the Genetics Doctor, Wednesday we have Ophthalmology, Thursday is GI, Friday is Neurology and of course Tuesday and Thursday our regular oral therapy sessions. It will be a busy week but we will get to learn more about Amber and what she will need in the future.
We continue to be grateful for all your wonderful and positive thoughts, messages, prayers, calls and love. Thank you so much.
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