4 Weeks At Home

Today we went for a walk outside together as a family. It's so nice to see everyone and feel good to be outside of hospitals. Amber continues to be well. She has lots of gas, not sure if it's because she has a MIC-KEY button or because we started using probiotics (they both happen on the same day), she is crying two to three times a day trying to pass it for about 20 minutes, its so sad.

This past week we saw the Endocrinologist, someone from his office will call to make another appointment for a special stress test that takes 3 hours. This will tell us if Amber will need hormone supplements or not. We also went to our first swallow therapy but didn't do much work, someone from their office will call to make a schedule for the E-Stem therapy. It will be twice a week and after a while we will redo the swallow study. It seems that I go to appointmets, wait to see a doctor who tells me I need to wait to see someone else. Anyways the important part is that she is home and growing... she is 10 lbs 2 oz, drinking 85 cc every 3 hours. I took inventory of the breastmilk the other day, I only have enough for about one more month :-(

This week we have our first set of vaccines and another follow up on her eyes, thank you for all your prayers, thoughts and positive energy. A special thank you to Moms Club for their assistance through the Mother2Mother fund, we appreciate the way they stepped up to give us a hand. I continue to thank God for Amber, for my family, and for all of you our friends. We pray that each of you are blessed each day, how we are blessed.