Friday, March 6, 2009

March 6, 2009

Hi everyone,

Thank you again for continuing to pray for Amber and our family. Also for continuing to offer to help with anything we need. The time will come soon when I will be calling on you... Amber will in LA and I will need coverage with the girls on a few days.

Kelly, Amy and Wetzel - Thank you for finishing the girls rooms, Taylor loved all her Tinker Bell stuff. I got her Tinker Bell bedding which completed the room for a priceless look on her face... thank you.

Suzanne, Robbie, Katrina, Barbara, Charlene, May, Cindi, and Helen - Thank you for the baby gifts and gift cards, I was able to purchase her Alphabet Soup Mobile to put in her crib at the hospital, some blankets for her to keep at the hospital and little clothes to dress her. She can only wear onesies and jumpers with buttons in the middle so it makes it hard to use thing we already have, I had to get all new stuff for her... no zippers or slip over.

NO NAME GIFT - We had one of the things I registered for from Target delivered to the house the other day with no name and no card... anyone?? If you can tell me what it was you get the credit for it :-)

UPDATE: Amber is doing great she weights 5 lbs 5 oz as of today (See attached pictures). As they do more test to answer her heart condition and prepare us for the future they rule out more things without answers. However, an eye test revealed she has cataracts in both eyes. This will require surgery by a specialist in LA, she will be transferred some time next week or so. Because of her heart, they will do one eye at a time, not sure if she will go and come back each time or just go once and come back after they are done. Also, she is not doing well with the swallowing so they will be putting a G tube in her stomach for feeding. Once all this is done she will be coming home :-). They will operate on her heart when she is 6 to 9 months old (they are looking for growth and strength). I asked what is the growth they are looking for? They said 9 to 10 lbs... So please help me pray for a successful surgery on both eyes and removal of the cataracts. Pray for continual growth to prepare for heart surgery later. Pray for no infections with this G tube, for us to feel comfortable with it once she is home and for the girls not to be too curious about it and let it be. Pray for overall continued health with her heart, oxygen and growth. And most of all, help us say thanks to God for all the positive that she has gone through and for how strong my little angel is.

Thank you and love you all for you support and love,
Jessie

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