March 11, 2009

Hi everyone,

Please have extra prayers going Amber's way tomorrow (Wednesday) she is having surgery. Her feeding did not go as planned because she is not protecting her airway. So they had to stop working with her since milk was getting into her lungs which could cause pneumonia and other complications. She will have to be fed through a tube in her stomach and they also have to do a Nissen Fundoplication to tighten the esophagus. The Fundo is so that she doesn't spit up and cause the same problem when the fluid goes back down.

Once she goes home she will have outpatient therapy to work on her throat muscles in the meantime she needs to continue to eat. The tube is the best way to get home before her heart surgery and help her gain weight. Once she can feed and swallow on her own the tube will come out, however, the fundo will stay in place which we are not happy about. The eye surgery to remove the cataracts looks like it will be some time early next week but that will be the next chapter, I have to concentrate on tomorrow for now.

Thank you again, (see her latest paparazzi pics... she was one month old on Tuesday, March 10th :-) )
Jessie

PS Joanna and Joy went home on Tuesday... I continue to pray that Joanna is confident in taking care of Joy and all her needs. Thank you for your prayers for them it was a great day the whole family was there to take this liprecious baby home... can't wait