June 2010

Amber is babbling more, she sings, smiles, shows connections from one thing to another. We are still working on her fine motor skills and gross motor skills. Her tube area leaks about 3 to 4 times a day which means we are constantly changing her clothes. She is such an easy baby because even though we have to rip the tape from her skin to change the gauze she stays still. She wants to move around more so she gets on her feet and then her arms are extended on the floor as if she is going to stand up but I think her legs are too little to support her whole body. I am looking forward to feeding tube to be surgerically closed so she can wear her bikini to the pool.


June 9 – Dr. Sayed, dentist, first dentist appointment, will have to wait to do xrays when she’s about 2 or 3 yrs old. He cleaned her one front tooth (she’s had since December) and we are hoping she gets more. He can’t tell because some areas have what he called buds while other areas had hollow.

June 11 – Dr. Swensson, echo cardiogram excellent, heart continues to heal and minimize the enlargement prior to surgery. Valve still moderate to mild not getting worse, will encourage regular activity with limitations now but her own limitations once she can speak and let us know. i.e., swimming always allow her to touch the floor or our knees, do not let her struggle to swim or breath under water, take it slow. We got a six month pass.

June 26 – Dr. Song,

Oral Therapy – Amanda continues to work with Amber, all food by mouth only, stage 2 working on different texture like crackers. Eating cheese and crackers, peanut butter and crackers, and Stage 3 but that’s harder she doesn’t like it. This is Amanda’s last month with Amber, she got promoted and will no longer work with kids. Requesting ICEC program to take over.

Physical Therapy – OT with Jeanie from ICEC program once a week for one hour, working on fine motor skills. Need to request physical therapist, and additional time to cover feeding and fine motor therapy.

ICEC – Tuesdays and Thursdays from 9am to 12pm group therapy, music, feeding, speech, fine and gross motors skills are worked on for about 15-20 each section. With a snack break in between, parent group discussion once a week.