May 2010

Amber is walking around with support more. She loves to read and look at books. She enjoys music...favorite song right now "Itsy bitsy Spider", she will put her hands up over her head and do the spider going up so you can start to sing. My favorite parts are when she starts to do her request. She has the best smile and is such a happy baby every morning she wakes up with a smile. She has discovered to tupperware cabinet and they go everywhere. She now hates the patch on her left eye and I have the feeling Dr. Song is going say we need to do it for more time.


May 1 – Pulled feeding tube out at home.

May 19 – Dr. Grant, rectal exam muscle contraction good, feeding tube area will not close on it’s own make appointment for surgical closure.

May 26 – Dr. Gibbs, appointment for surgery evaluation, need to make surgery appointment he is booked for 2 to 3 months out. Feeding area will not close on it’s own.

May 27 – Dr. Comulada, sick do breathing treatments and antibiotics due to long holiday weekend.


Oral Therapy – Amanda continues to work with Amber, all food by mouth only, stage 2 working on different texture like crackers. Eating cheese and crackers, peanut butter and crackers, and Stage 3 but that’s harder she doesn’t like it.

Physical Therapy – Started OT with Jeanie from ICEC program once a week for one hour. Need to request physical therapist.

ICEC – Tuesdays and Thursdays from 9am to 12pm group therapy, music, feeding, speech, fine and gross motors skills are worked on for about 15-20 each section. With a snack break in between, parent group discussion once a week.