All About Amber

November 2009

This month we are so thankful to still be home... no hospitals and thriving.
HAPPY THANKSGIVING !!!!

Medically:

Neurology wants to continue to keep an eye on her everything looks ok now will follow up in 6 months. Cardiology wants to keep her on the low dose of Lasix and gave her a 2 month pass our next appointment will be in January. Ophthalmology wants to wait on left eye surgery, we will put a contact lense in the meantime until she is older or Dr feels it's time for surgery. GI says she's doing well. I pulled her MicKey button on her carseat but the site looks good (Thanks Jenell for checking it at home). Oral therapy is also going well we are on stage 1 foods, drinking 2 to 3 oz on and off and will be trying puffs soon. Physical therapy also going well she is rolling over more and more.

Socially:

Amber loves being outside and around people. She is always happy and smiling at people and kids. At home, she can't get enough of Taylor tumbling around, Kyana dancing and Daddy bouncing her up and down. We love taking her out and feel good to be more mobile with her. We are truly a family of five now.

Halloween

The Last Three Weeks

I know it's been a while but I've been really busy.... taking the girls to school, helping with homework, physical and oral therapy, doctors appointment, trying to lose weight and spending time with my wonderful husband something has to give. I am glad I've been able to keep in touch with a few of you through Facebook, I can send messages from my phone and I keep a few updates that way. Well I can tell you that Amber is doing great. Her right eye has healed beautifully and has made such a huge difference with everything. She is able to see better which helps with her physical therapy and oral therapy.

Physical therapy - Amber is still working on rolling over, she doesn't really like being on her tummy so it makes it hard. She is reaching for things, putting things in her mouth, reaching for her toes, seating without help for a little less than a minute, rolls from side to side but not to her tummy yet.

Oral therapy - We've made big steps here, she is drinking 30 to 50 cc at every meal and then the rest goes in through her feeding tube (a total of 130 cc). She had another swallow study this week and she no longer aspirates. We are moving forward she has been eating a little bit of cereal in the morning but next week we will start foods... yeah bananas are first.

She is teething too, the front tooth is coming out. She babbles a lot and just loves to be outside and around people. Taylor really entertains her with all her jumping and dancing. While Kyana is the gentle, careful one who makes sure she doesn't cry too much. Because she's high risk, all of us got the flu shot and she already got the first swine flu shot. She will get a booster of that in a month and more vaccines too. The two flu shots put her behind on vaccines even more.

So so grateful everyday, so blessed and just thankful. Please keep praying for her success... thank you so much.